Oct 30th,
Xander is great today. Lots of happy energy. It is his plan to be
a cyborg for Halloween so tomorrow is a big day for him. The karate dojo has a party that includes trick or treating at decorated
parent vehicle truncks and that is were he will be.
Oct 28th,
Xander is dong much better. He is definitely coming down with something,
sniffles, exhaustion, bad attitude..... He doesn't look like a call to Doernbecher is coming soon though. Unless he get a
fever he should be ok.
Oct 28th,
Keep your fingers crossed!!! Xander woke up fine today at 8:00 which
is normal for him. After a hour of "normal" he said his legs were really tired and tingly. They often get that way after allot
of activitiy or hanging down when he is sitting in a chair, but he was curled up on the couch so this is odd. About 15 min.
min later he "fell asleep". The odd part is he had just asked for a snack and had just recieved it when he rolled over "asleep"
It was still in his hand. Xander shouldn't be over tired so I don't know what is going on. He has been out for a hour
now, and Its almost 11:00. I'll post back when he is up and around. We are under orders to notify Doernbecher of this kind
of "oddness" if it continues past wake up. I know for a adverage child this is no big deal, but for Xander it could be allot
more.
Oct. 23rd,
Xander spent yesterday afternoon at Thistle Down Farms. Thanks to
Thistle Down and the Candle Lighters many young children from families dealing with childhood cancer recieved a horse drawn
"hay" ride out to the pumpkin patch and a free pumkin to take home and carve. Xander and both his sisters participated in
this. I'l post pictures as soon as I can, but it might be a week or so. Xander had a blast. He must have "chose" 15 pumpkins
before landing on just the "right" one. As far as his health goes he seems to be great. We had two nasty nose bleeds today,
and his legs continue to get "tired".
Oct. 16th,
Xander had a much stronger reaction to his predinisone this cycle.
We had the attitude and apetite from earlier phases of
chemo treatment. The steriods are only for 5 days, but the effects last a bit longer. Just this morning Xander started acting
like himself. I'm glad the cranky bear is leaving for now. I like the sweet boy much better. Other then that he is doing very
well.
Oct. 12,
Xander has had not more pain.
Oct 10th, Well I think things are going good. Xander woke
up with "chest" pain this morning. It would be so nice to sit back and think just "growing pains". Not so. It was a quick
call to Doernbecher Children's Hospital and a confirmation of the game plan. We were headed off to Xander's karate class.
We told him to do what he felt able to do with the expectation that if the pain was enough he would sit out. If it was mild
or temporary the class would distract him and bring him out of whatever "it" was. Then it was a quick call the our local Pediatrician
to explain the situation and set up a apt. for 4:00 today if the pain did not go away with the understanding for all that
the apt. would be canceled if his pain went away. Finaly we were off to karate. Of course a short time into the class the
chest pain went away, and he is back to be a fatigued, but more normal little boy. Everyone is keeping a close eye out
for symptoms of more chest pain just in case it comes back and Xander chooses to not mention it avoiding a DR visit.
This morning he was holding his arm to his side and curling his body as well. It wont be hard to miss even if he
chooses to keep quiet.
Oct. 8th,
Xander is doing better. He still has a sniffle and cought, but the
virus has not materialized into anything worse.
